Ramblings

I’m taking part in the 2011 Walk for Hope & Possibility: San Diego, CA to raise money for the REFLEX SYMPATHETIC DYSTROPHY SYNDROME ASSOCIATION (RSDSA)


- If you can, please make a donation by visiting my FirstGiving page:
You can donate online with a credit card. All donations are secure and sent directly to REFLEX SYMPATHETIC DYSTROPHY SYNDROME ASSOCIATION (RSDSA) by FirstGiving, who will email you a printable record of your donation.

Please send my page on to anyone who might like to donate!
Any bit helps!

THANK YOU! 

Like a serious road trip… cross country

Like a serious road trip… cross country

<3 Makes me cry. I’ve felt this goodbye.

<3 Makes me cry. I’ve felt this goodbye.

I&#8217;m NOT a drug seeker or a druggie. If you give me ibuprofen or tylenol I won&#8217;t take it because it WON&#8217;T do ANYTHING. I&#8217;m a college kid who loves school, friends, family, my sorority, and much more. I would not waste my time IN THIS HOSPITAL BED with these TUBES AND NEEDLES IN ME if I wasn&#8217;t in AGONIZING pain. I am not a drug addict, but I do need more medicine and stronger medicine than most people my age/my size. My body has a HIGH tolerance for medication. You even have trouble getting me to sleep for surgery because I have such a high tolerance. I don&#8217;t know why, but it is not because I abuse medicine. I hardly even ever take opiates. But right now I feel like I am dying so please, please just give me what I know will work. You have the ability to help relieve the slightest bit of my pain/make me more comfortable, but you refuse because you think i&#8217;m making it up and its all in my head. It&#8217;s not. I know most 19 year olds don&#8217;t need dilaudid for an invisible pain, but I am not like most 19 year olds. I have RSD. It hurts. It may be invisible but that doesn&#8217;t mean it doesn&#8217;t EXIST. Please learn more about this so that others like me can receive the treatment they need when they need it.

I’m NOT a drug seeker or a druggie. If you give me ibuprofen or tylenol I won’t take it because it WON’T do ANYTHING. I’m a college kid who loves school, friends, family, my sorority, and much more. I would not waste my time IN THIS HOSPITAL BED with these TUBES AND NEEDLES IN ME if I wasn’t in AGONIZING pain. I am not a drug addict, but I do need more medicine and stronger medicine than most people my age/my size. My body has a HIGH tolerance for medication. You even have trouble getting me to sleep for surgery because I have such a high tolerance. I don’t know why, but it is not because I abuse medicine. I hardly even ever take opiates. But right now I feel like I am dying so please, please just give me what I know will work. You have the ability to help relieve the slightest bit of my pain/make me more comfortable, but you refuse because you think i’m making it up and its all in my head. It’s not. I know most 19 year olds don’t need dilaudid for an invisible pain, but I am not like most 19 year olds. I have RSD. It hurts. It may be invisible but that doesn’t mean it doesn’t EXIST. Please learn more about this so that others like me can receive the treatment they need when they need it.

Spending the weekend with Dilaudid, =/

So I’ve been going going going nonstop for sorority recruitment. And of course… I over did it and caused a flare up. And now due to the medicine for the pain I am over emotional and want to vent a bit. 

I’m in one of those 
“I want to be able to do as much as all the other college kids.” moods.
I want to be able to stay up til 3:30 night after night for sorority recruitment.
This was my week: I got home between 2-3am Monday night, woke up at 10am Tuesday morning, got home at 230 Tuesday night, slept in until noon on Wednesday, went to bed at 10pm Wednesday night, woke up at 445 on Thursday morning, got home at 3am last night and woke up at 7am this morning for a meeting. I was so exhausted my body kinda just gave up and I crashed my car into my sisters car. =/
Now i’m stuck in bed in a flare-up and heavily medicated while my friends are still going strong with events for the next 4 days with a similar if not worse schedule.

I just wish that I got “tired/exhausted/worn out” like most people/college students.

I want that “oh my gosh I’m EXHAUSTED… I’ll sleep for 12 hours and be completely recharged and ready to go” 

Exhausted for me means borderline ER, major flare, heavy medication and bed rest.

exhausted for my friends/family/sorority sisters means “power nap”

I apologize for my “poor me” mood. 
They are very rare for me and I hate them and usually keep them to myself. 
But i figured I would try venting and see how it works.